Comments on: Declaration of Health Data Rights

By: Addison Disease

Addison Disease — Thu, 10 Dec 2009 14:53:35 +0000

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By: loopzy

loopzy — Thu, 03 Dec 2009 15:08:11 +0000

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By: Agnieszka

Agnieszka — Wed, 11 Nov 2009 15:14:51 +0000

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By: adambosworth

adambosworth — Thu, 01 Oct 2009 20:57:39 +0000

I hope this is true but works better when consumers pay.

By: Ralph Forey

Ralph Forey — Tue, 22 Sep 2009 23:07:51 +0000

Those stalling the revolution are:

Government (DHHS, FDA, Congress) + lawyers + patients concerned about privacy.

Patients are the easiest problem to solve. Offer security + value and they will trade privacy.

The Government? May require revolution. Our freedoms are a threat to the government. They want to control you for your betterment. Try to wrestle this control away from them (i.e., regain your freedom) and find yourself in the crosshairs. We’ve allowed them so many weapons of warfare (HIPAA, GMPs, etc.) For example:

- Produce an offering that allows people to blog about adverse events and you fail to monitor and report these to the FDA and see what happens to your service. (483/warning letter/consent decree/sued out of business)

- Allow people to make “mistakes” in sharing their personal health data and see what DHHS does.

Lawyers? They’re just opportunists. Allow a patient to get bad (or even
incomplete) advice through your offering and lawyers will make you pay! Enough said!

Free markets will take care of everyone/everything else (doctors, hospitals, software, computing power, etc.)

Good luck with the Gov and lawyers.

By: Health Data Rights Moves Health Care into the 21st Century | Weight Watch

Health Data Rights Moves Health Care into the 21st Century | Weight Watch — Sat, 11 Jul 2009 21:57:51 +0000

[...] of support to bring the health care industry into the internet and mass communication age. Adam Bosworth, the former head of Google Health, does a great job of articulating why the change is well [...]

By: Health Data Rights Moves Health Care into the 21st Century | Diets in Review Blog

Sat, 11 Jul 2009 06:02:54 +0000

By: Declaration of Health Data Rights « ScienceRoll

Declaration of Health Data Rights « ScienceRoll — Tue, 23 Jun 2009 20:50:12 +0000

[...] Meskó in Health, Health 2.0, Healthcare, Innovation, Medicine, Web 2.0, eHealth. trackback Adam Bosworth published a very important [...]

By: Brian Baum

Brian Baum — Tue, 23 Jun 2009 13:57:46 +0000

I was once told that “change” in healthcare cannot come from within. This message was delivered at one of the top medical institutions in the U.S. The change that is essential is the role of the consumer. The consumer must become engaged in proactively managing their health. For that to happen – innovation must occur. Tools, services, resources and highly accurate, personal and timely information must be available to the consumer in an engaging manner that motivates them to be proactive – to work in concert with their health provider team. I think the foundation lies in automating data – “liberating” data, as I heard at a recent conference. The Declaration of Health Data Rights – while intuitive, I believe is a significant step in changing how we look at this issue. Healthcare must be consumer centric – if not, why does it exist?

By: David C. Kibbe, MD MBA

David C. Kibbe, MD MBA — Tue, 23 Jun 2009 11:37:12 +0000

Great post, Adam. DCK

By: ICMCC Website - Articles » Blog Archive » Declaration of Health Data Rights

Tue, 23 Jun 2009 09:11:13 +0000

[...] Article Adam Bosworth’s Weblog, 22 June 2009 SHARETHIS.addEntry({ title: "Declaration of Health Data Rights", url: "http://articles.icmcc.org/2009/06/23/declaration-of-health-data-rights/" }); [...]